Len, that was a great post and there are two people in my life I'll be sharing it with as they are battling severe spinal pain, too. Maybe this option can help them. God bless you on your journey to find relief and get your normal life back.
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Sever Chronic Pain and Spinal Cord Stimulators – NERVO
- Thread starter Coyote Shadow Tracker
- Start date
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That is wonderful news! I am so happy you have hope for relief.
Maybe you can hook a solar charger to keep the battery charged...lol
It's charged wireless as the permanent is inside your body. Maybe a 48 hour retained charge? I can't remember the exact time?
Good evening all!
I just want to thank everyone for your prayers and responses/PMs. You are all a GREAT bunch of people we have made many new friends since being on this forum.
Since I am waiting for the Permanent Implants it is back to being in pain 24/7, not too much interaction with anyone or any activity. I am trying to keep up with responding to PMs and Texts I can't wait until next week 11/23 to have the surgery done and start getting relief.
As far as the electrical part and re-charging. They will put the SCS unit, which includes the electronics and battery under my skin located in my back. To charge the unit there is a "Battery Pack" that is charged off the 110V wall. this battery pack is then worn with a belt and the battery pack is placed over the area where the SCS is located. The unit will than be charged "Wireless". From the instructions I have read so far this is done every day typically the same time. It is automatically controlled and unit will sense how much charging is needed. This all depends on how much of electricity is used by the SCS unit.
The "Solar Charger" is a good idea. I can just wear the panels on my hat when I go outside. Last week with the "TEST" Implants I looked like a CYBORG with wires sticking out of my back and and a battery taped to me.
I will give everyone an update by the end of next week. I'll probably be sore from the surgery on Tuesday with putting the battery in my lower back and then sliding the wires under my skin and on top of my spine to the base of my skull along with stitching everything to my inside. They say recovery is about six weeks for everything to get attached to flesh. Looks like all the rifle builds we wanted to have finished by the end of the year will have to wait until the beginning of 2022. I really miss shooting, hunting, and building, but not going to miss all the pain.
It will all be worth it if I get the same amount pain relief as the Test. It will be life changing!
We are always praying for other's that are going through chronic pain and wish that they can have relief also.
Thanks & God Bless
Len
I just want to thank everyone for your prayers and responses/PMs. You are all a GREAT bunch of people we have made many new friends since being on this forum.
Since I am waiting for the Permanent Implants it is back to being in pain 24/7, not too much interaction with anyone or any activity. I am trying to keep up with responding to PMs and Texts I can't wait until next week 11/23 to have the surgery done and start getting relief.
As far as the electrical part and re-charging. They will put the SCS unit, which includes the electronics and battery under my skin located in my back. To charge the unit there is a "Battery Pack" that is charged off the 110V wall. this battery pack is then worn with a belt and the battery pack is placed over the area where the SCS is located. The unit will than be charged "Wireless". From the instructions I have read so far this is done every day typically the same time. It is automatically controlled and unit will sense how much charging is needed. This all depends on how much of electricity is used by the SCS unit.
The "Solar Charger" is a good idea. I can just wear the panels on my hat when I go outside. Last week with the "TEST" Implants I looked like a CYBORG with wires sticking out of my back and and a battery taped to me.
I will give everyone an update by the end of next week. I'll probably be sore from the surgery on Tuesday with putting the battery in my lower back and then sliding the wires under my skin and on top of my spine to the base of my skull along with stitching everything to my inside. They say recovery is about six weeks for everything to get attached to flesh. Looks like all the rifle builds we wanted to have finished by the end of the year will have to wait until the beginning of 2022. I really miss shooting, hunting, and building, but not going to miss all the pain.
It will all be worth it if I get the same amount pain relief as the Test. It will be life changing!
We are always praying for other's that are going through chronic pain and wish that they can have relief also.
Thanks & God Bless
Len
I was going to ask if there was some type of solar unit for this. When pain is under control again, and I hope that is soon, you could enjoy hunting in the sun. I am very happy to hear of this technology, and hope it works good for your. Looking forward to hearing your update.
UPDATE!
I got home today around noon after 4 hours in the surgery center getting the SCS Implants put in. My neck feels OK, but my back where they put the wires under my skin and especially where the battery pack is located really is hurting up a storm. They told me "Rest & Heal" the next week so just trying to sit on the couch.
My SCS implant unit is set on a very low setting and won't be changed for at least one week to see how it is effecting me. I go in another week to get the stiches taken out and more training on charging and care. Right now the battery will last a lot longer than a week before charging.
Will let y'all know more next week
God Bless everyone else with chronic pain.
I got home today around noon after 4 hours in the surgery center getting the SCS Implants put in. My neck feels OK, but my back where they put the wires under my skin and especially where the battery pack is located really is hurting up a storm. They told me "Rest & Heal" the next week so just trying to sit on the couch.
My SCS implant unit is set on a very low setting and won't be changed for at least one week to see how it is effecting me. I go in another week to get the stiches taken out and more training on charging and care. Right now the battery will last a lot longer than a week before charging.
Will let y'all know more next week
God Bless everyone else with chronic pain.
Keeping you in prayer Len.
UPDATE
Well i guess it is time for an updated on the SCS. I had the operation on the 23rd and for the last few weekS I have been working with the Technicians at NERVO. Once or twice a week I meet with them by phone to discuss the progress of the Stimulator. It is not the same as the Trial period when I had over 80% relief.
The first week was rough due to having the wires, electrodes, and the battery pack implanted under my skin. The stitches take up to 5-6 week to heal.
I have to say that it has and is still rough for me. The Stimulator has (5) Programs and (7) power levels for each level. There is a period where they have to try these programs and power levels to see a positive result. There were supposed to be (2) Stimulator Cords implanted, but the Dr couldn't get the sec Cord in due to spinal cord space.
The first Program took pain away from C-1 to C-6, But had more pain in C-7 & T-1&2.
The second Program made everything worse.
The Third Program helped in taking away the pain from T-1&2 and C-7 and move it to C-6& C-5
They then increased the power level to #4. Neck still has a lot of pain and still need Pain meds.
It takes about a week for the Programs to affect the nerves so it is a 'Hit & Miss"
Tomorrow Thursday morning 12/23 I have another meeting. Probably going to get it changed to another Program & Power.
I still have a lot of hope for this system to work. Just got to get the correct electrical frequency hitting the right nerves. We still have several Programs & Power Levels and these Programs can also be combined. I am in the starting phase so they try the lowest setting first.
I have high hopes for one of these Programs to work because it is my last hope. I pray to God each day. If it finally works for me then there is HOPE for other people with my condition to get pain relief.
I get pain relief now, but with still using high doses of pain meds.
After (5) years of sever spinal cord pain I am kind of looking for a Miracal. I was told that it would not be total pain free but would help a lot. Right now I am looking for that "HELP A LOT" .Sometimes especially in the morning when I am in a lot of pain and do not feel like or want to do anything is the WORST for me. I used to work 16 hours a day 6-7 day a week and loved it. Now it is hard jut to go to the mail box or read. We have all new Gunsmithing Equipment, Machines, Cerakoting Equipment and can get that just little extra push to get started. We have (%) rifle builds ready to go with the barrels, actions, triggers, stocks, Glass, and enough powder, brass, bullets, primers to burnout several barrels in each caliber.
Hopefully thing will change soon. I have several friends coming over to place our Lathe and mount/level it right after Christmas. Then some electrical and get the Cerakote operation hooked back up. Once you make a plan then things happen.
I still have some weeks of testing different Programs so I am hopeful and putting all my faith in Jesus Christ.
Could always use some positive thoughts and Prayers.
Merry Christmas and Happy New Year to all! 2022 is going to be a good year!
Len & Jill
jskmtd
Well-Known Member
My thoughts and prayers are with you. I had a stimulator put in the fall of 2016 and have had around 90% pain relief. This was after 4 years of severe pain and like you loss of employment. After getting the stimulator I was able to get back to work and back to enjoying the great outdoors. Keep your chin up and continue to pursue every option until you find something that works for you.
Jon
Jon
Rick Richard
Well-Known Member
Prayers for you brother. I had back surgery this year and it did not turn out like I had hoped, however the pain is gone. I too like you put all my hope in Jesus Christ our savior.
HARPERC
Well-Known Member
I had about 5lbs of Titanium placed in my back over the last year. Basically from butt crack to neck with a small gap.
I only mention it for 3 reasons. 1) It's hard to get folks to treat pain. 2) Not all are knowledgeable about, all options. 3) When the guys started praying for me I was headed for a nursing home not rehab. The next Dr. in the room, I never saw before, or again, changed my meds to something livable, and I went to rehab.
Prayer works, but remember Daniels wait. You're definitely included in mine Len.
